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National Policy for Rare Diseases:
April 9 , 2021
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- Recently, the Ministry of Health and Family Welfare has approved the National Rare Disease Policy 2021.
- The policy aims
- To increase focus on indigenous research and local production of medicines.
- To lower the cost of treatment of rare diseases.
- To screen and detect rare diseases early at early stages, which will in turn help in their prevention.
- The screening is to be supported by the Nidhan Kendras set up by Department of Biotechnology.
- Around eight health facilities are to be designated as Centres of Excellence of rare diseases.
- These centres are to be provided with a one-time financial support of Rs 5 crores.
- The Government of India has announced a financial support of Rs 20 lakhs under the Rashtriya Arogya Nidhi for treatment of rare diseases.
- This financial assistance is to be extended to 40% of the population.
- It is to be noted that, generally Rashtriya Arogya Nidhi is allocated only to Below Poverty Line people.
- The rare diseases recorded in India are
- primary immunodeficiency disorder,
- Cystic Fibrosis,
- Pompe disease,
- Gaucher’s disease,
- fabry disease,
- maple syrup urine disease, etc.
Note
- February 28 is observed as Rare Disease Day every year.
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